Phew. What a week. Like the petals plucked from a flower in a childhood game, we’ve had a good day, not so good day, good day, not so good day, good day!
Dexamethasone has become a word I dread. The name of the steroid medication Poppy took for the first five weeks of treatment, it reared it’s ugly head again this week as we began a new 5 day course. I was warned from the beginning that the steroids were the worst part of the treatment…by the doctors and nurses, as well as other parents of children who have undergone this and by Graham who has experience of them with his own patients. Somehow it’s only through my own actual experience that it has dawned on me what everyone was talking about. There is quite simply nothing that could have prepared me for what was to come.